Beginning your journey with MPS or ML:
Where to begin
Learn more about the specific MPS syndromes by visiting the MPS Library and downloading a copy of our syndrome booklets and fact sheets. Visit clinicaltrials.gov for the latest in clinical trials and natural history studies.
Schedule a home visit with Family Support Lead Coreen Gray who can help guide you through a new diagnosis and learn what to expect.
Become a member of the National MPS Society. Membership is free for patients, friends and families. Contact Program Director Alison Blue or fill out the online application here.
Connect with other families who have a child with the same syndrome. The National MPS Society office can help make this happen. Other parents are the best resource available. Contact us for details.
Attend local MPS events. Is there a fundraiser or walk/run happening in your area?
Know that you are not alone. See our Emotional Response to Diagnosis Fact Sheet and a presentation on Coping with MPS.
Learn how the National MPS Society was started by parents just like you.